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momto3

(662 posts)
6. I think this is a common struggle for all, even those without a diagnosis.
Fri Dec 23, 2011, 11:51 AM
Dec 2011

I know that my disease, and therefor myself, are often invalidated by my SO. He simply does not understand. Although he is now trying since our daughter has so many problems.

I find that is hard for me to be supportive of others when I am in the midst of a cycle, or am dealing with my daughter who is cycling. I do not mean to be insensitive, but at the point I cannot think of anyone else. I really hope that this does not come across in this group. I do not want to alienate anyone due to my, usually temporary, lack of sympathy.

I think what is important is to realize that it is inevitable that we will do things at some point that hurts others, but that what is important is how we deal with afterwards.

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