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auntAgonist

(17,263 posts)
6. Thanks Warpy! Yes, I've had every test under the sun and then some :)
Sun Sep 25, 2016, 04:00 PM
Sep 2016

Malabsorption - short bowel syndrome. I'm currently on tpn again for the 3rd time this year. I usually have to have it at least once a year to the tune of about 2100 calories. Lipids and all sorts of good nutrition over 12 hours.

I eat a fair bit of food usually. I can tell as soon as need the tpn. I start to swell, pitting edema in both ankles. Bloating. My pre-albumin, albumin and total proteins all go haywire.

I think my to many it seems that my Hematologist is too quick to transfuse but if she doesn't jump on it I end up very ill. So, when that magic number (hemaglobin) hits 10 I get a unit of packed red blood cells. Prior to that they often have already tried 5 iron infusions over 5 days. (they used to do it over 2 weeks but I have no problem tolerating it over 5 days)
IF the iron doesn't boost the hemaglobin I get the unit of blood. It usually takes about 3-4 weeks for the iron to affect the hemaglobin so we play the waiting game there.

I get excellent care from my hematologist and rheumatologist, my pcp not so much but I'm thankful for the specialists.

aA
kesha

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