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Cancer Support

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Sparkly

(24,560 posts)
Sat Jan 4, 2025, 11:59 PM Jan 2025

It's back. :( [View all]

Yesterday, I got the news I've been dreading: the high-grade serous endometrial cancer I battled with surgery, chemo, and radiation through 2023 - and since then with ongoing Herceptin infusions, scans, and tests to monitor - has metastasized to my lungs.

This puts me at Stage IV with a pretty dire prognosis. My oncologist is consulting other doctors about the risks of doing a needle biopsy for molecular analysis of the 'nodules' re: mutations (although I did have this in my first diagnosis, where genetic mutations were found - but Kaiser had sent me elsewhere, so something didn't transfer, I guess).

From there, I might repeat another six rounds of Carbo/Taxol, and lose my hair, eyelashes, and energy all over again -- to live how long? I know I shouldn't consult "Dr. Google," but it seems a matter of 5-12 months anyway, particularly if they don't do surgery. (And surgery has not been mentioned.)

I might just go straight to palliative care, but I have a baby granddaughter - a miracle! - and I want all the time I can to be with her and my daughter, to "put things in order," to write and record, to savor every minute and leave behind everything I can. The baby is 8 months old, so she will never remember me.

This is difficult. Life has given me many difficulties, so I'll find my way through this final one. (Meanwhile, please take good care of my husband, Stinky the Clown, and I hope you'll acknowledge whatever updates I, he, or we post as this goes forward.)

Meanwhile, I haven't told my daughter yet, and it weighs heavily on me. I want to tell her in person, but she's busy, taking the baby from place to place, working, managing her own healthcare needs... It's going to be extremely difficult for her to process, and I'm not sure how to spoon-feed it to her in small bites.

Thanks to all of you for 'being there' (meaning here, of course).

Sparkly (aka "Sparkly Fairy Princess," in my DU debut)

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It's back. :( [View all] Sparkly Jan 2025 OP
I'm so sorry Sparkly. Owl Jan 2025 #1
I'm so saddened to read of your dx SheltieLover Jan 2025 #2
Very very upset2 news gor you. riverbendviewgal Jan 2025 #3
I'm so sorry Sparkly. Bluethroughu Jan 2025 #4
You and Stinky will be forever loves blm Jan 2025 #5
Thanks, blm. It's been a long time, hasn't it? Sparkly Jan 2025 #44
Yep. There's still a few dozen of us here. blm Jan 2025 #48
That makes me feel better, somehow! Sparkly Jan 2025 #59
😎🤓😎 blm Jan 6 #62
I'm sorry to read this. Just don't surrender without another fight. I think it's best to lay your sinkingfeeling Jan 2025 #6
I agree with you. Sparkly Jan 2025 #45
Im so sorry to hear this. Hugs. Vibes. onecaliberal Jan 2025 #7
Sorry to hear your medical prognosis. magicarpet Jan 2025 #8
Precious time shared with your husband, daughter and granddaughter Pachamama Jan 2025 #9
That's absolutely in my plans. Sparkly Jan 2025 #46
Definitely write about it. As much as you can. calimary Jan 6 #61
I'm so sorry. My thoughts are with the both of you. Solly Mack Jan 2025 #10
I am sad for all of you. I understand how you want to spend your time. delisen Jan 2025 #11
Sometimes, there are no words... Marie Marie Jan 2025 #12
We are all sending good DU vibes your way. Nt spooky3 Jan 2025 #13
:hug: :grouphug: elleng Jan 2025 #14
Dammit 😔 FirstLight Jan 2025 #15
I'm so sorry to hear this karin_sj Jan 2025 #16
Thank you Sparkly Jan 2025 #47
I'm so sorry. Dr. Shepper Jan 2025 #17
I'm so sorry. I wish I could help. n/t Greybnk48 Jan 2025 #18
My husband and i are almost mirroring you. Its tough and i wonder if the Karadeniz Jan 2025 #19
Thanks. Sparkly Jan 2025 #49
You are very brave soul and a thoughful parent Joinfortmill Jan 2025 #20
Oh Sparkly. summer_in_TX Jan 2025 #21
I'm sorry. cate94 Jan 2025 #22
I am so sorry, Sparkly. sheshe2 Jan 2025 #23
This is hard to hear... 2naSalit Jan 2025 #24
... Kali Jan 2025 #25
Gut wrenching news .. Jarqui Jan 2025 #26
Exactly. Sparkly Jan 2025 #50
Get more than one opinion Jarqui Jan 6 #63
Big Hug Sparkly proud patriot Jan 2025 #27
Sometimes the fight Figarosmom Jan 2025 #28
Wish I could fix this KT2000 Jan 2025 #29
Holding you in my heart, Sparkly radical noodle Jan 2025 #30
I am so sorry. My heart is breaking for you and your family. Dem2theMax Jan 2025 #31
Thank you - that is important advice. Sparkly Jan 2025 #51
Holding you and Stinky in love and light. Your DU family is here for both niyad Jan 2025 #32
Many thanks, niyad. Sparkly Jan 2025 #52
Whew IbogaProject Jan 2025 #33
Thank you Sparkly Jan 2025 #53
Hey sweetie - calimary Jan 2025 #34
The moments are few. Sparkly Jan 2025 #54
I'm so very sorry, Sparky. Sending skylucy Jan 2025 #35
I'm so sorry to hear of this heartbreaking diagnosis. virgdem Jan 2025 #36
So very sorry to read this, Sparkly Fairy Princess babylonsister Jan 2025 #37
Thanks, babylonsister! Sparkly Jan 2025 #55
And I of course remember you babylonsister Jan 7 #65
I am so sorry. murielm99 Jan 2025 #38
I'm so sorry XanaDUer2 Jan 2025 #39
Breakthrough medications tacksam Jan 2025 #40
Thank you! Sparkly Jan 2025 #56
Welcome to DU! KS Toronado Jan 2025 #57
I'm so sorry, Sparkly. brer cat Jan 2025 #41
I guess due to the recs I was able to see this - TBF Jan 2025 #42
Hello, TBF Sparkly Jan 2025 #58
-- Oh my goodness, thank you all so much for your replies, support, and care!! -- Sparkly Jan 2025 #43
I am crying. Ferrets are Cool Jan 6 #60
That is horrific...so sorry 😢 Meowmee Jan 7 #64
I read these posts about your health BootinUp Jan 8 #66
With deepest sympathy, in no way meant to disallow an unexpected... NNadir Jan 9 #67
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