Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

slipslidingaway

(21,210 posts)
39. You are on your way, be a good patient, but not too good to question! I think too often docs ...
Thu Feb 18, 2016, 12:20 AM
Feb 2016

look at numbers to see if you are in the 'range' and fail to look at the trend, my husband has a blood cancer (MDS that led to AML and has undergone two bone marrow transplants) so I am all about trends in labs. I realize others are in a different situation and have other tests which I do not understand.

Our daughter is an internal med doc and I know she studied very hard and cannot even begin to tell you that I could not have memorized all those binders that were under her bed! But sometimes we just need to look at OUR picture. She is not going to micro manage her Dad's treatment, she is not an oncologist, not too mention a transplant doctor, and they have such different standards as we have learned over time. I cannot tell you how many times I have asked for another lab test to be included which led to a change in medication.

Stay involved and Question, but not so much as to get bogged down in every detail, BUT let someone else do that for you. Remain determined and keep that sense of humor, that is your job.









Recommendations

0 members have recommended this reply (displayed in chronological order):

oregon health sciences has a ton of money right now mgmaggiemg Feb 2016 #1
Thanks alfredo Feb 2016 #2
super...keep us posted ;) mgmaggiemg Feb 2016 #3
Will do. alfredo Feb 2016 #10
I won't say welcome, but this is a great group with wonderful people Solly Mack Feb 2016 #4
It's still early, and I have questions and concerns. alfredo Feb 2016 #7
Well, that's gotta be a shocker, for sure. dixiegrrrrl Feb 2016 #5
No, but this is a state with a lot of farmers. alfredo Feb 2016 #8
It's a good thing that you've found this group on DU. auntAgonist Feb 2016 #6
Thanks. Solly Mack urged me to join you guys. She's been a big help. alfredo Feb 2016 #9
if I'm alive you can do this olddots Feb 2016 #11
My right side parotid gland is kaput. I was told it would never function again. Solly Mack Feb 2016 #12
There hasn't been any therapy yet, but I will ask a lot of questions at the oncologist visit. alfredo Feb 2016 #24
I do therapy for my lymphatic fluid, but then I had 31 lymph nodes removed. Solly Mack Feb 2016 #25
Synthroid? I have noticed a low grade sore throat. Might as well get used to it. alfredo Feb 2016 #26
I didn't ask for a drug by name so much as asked if there were any. Solly Mack Feb 2016 #27
L-thyroxin is a Thyroid replacement drug. My wife has been on it most of her life. alfredo Feb 2016 #28
I was speaking of things that are supposed to help protect the thyroid during treatment. Solly Mack Feb 2016 #29
I understand. Off to bed for me. PET scan in the morning. alfredo Feb 2016 #30
I just declared that whatever it is, I will deal with it. alfredo Feb 2016 #13
Technical question Tab Feb 2016 #33
Humidifier. alfredo Feb 2016 #44
Wishing you the best, although the best would be that never you found this forum ... slipslidingaway Feb 2016 #14
Thanks. I am staying positive, and I have a good family to support me. alfredo Feb 2016 #15
Wonderful that you have a great support system and attitude ... slipslidingaway Feb 2016 #31
Thanks. It's 6:30 AM, those are groggy steps. alfredo Feb 2016 #32
And a sense of humor will serve you well ... slipslidingaway Feb 2016 #35
My Zoloft dosage has been increased. alfredo Feb 2016 #36
Well we do not want that sense of humor to be dampened! Ativan was the drug of choice ... slipslidingaway Feb 2016 #37
I'll do anything I need, and I have friends to help me. alfredo Feb 2016 #38
You are on your way, be a good patient, but not too good to question! I think too often docs ... slipslidingaway Feb 2016 #39
My wife had oral surgery this week, that gave a good test run. alfredo Feb 2016 #40
Wife's are wonderful ... slipslidingaway Feb 2016 #41
She's been my rock for the past 35 years. alfredo Feb 2016 #42
Welcome to the Big C Club!! Tab Feb 2016 #16
Hello, and thanks. What should I wear to the PET? alfredo Feb 2016 #17
Nothing with metal, although I'm not sure that was a requirement or just remnants from the MRI days Tab Feb 2016 #18
I will wear my sweat pants, then pick up some coffee and a scone on my way out. alfredo Feb 2016 #19
There you go! Tab Feb 2016 #20
Thanks. I've taken on the attitude, "I'll deal with it." alfredo Feb 2016 #22
dress warm olddots Feb 2016 #21
I've got plenty cold weather shirts. I will dress in light layers. alfredo Feb 2016 #23
They usually offer you a warm blanket though Tab Feb 2016 #34
The warm blanket was a nice touch. alfredo Feb 2016 #43
When do you get your results? Tab Feb 2016 #45
No idea. I get the feeding tube and a biopsy next week. They will contact me. alfredo Feb 2016 #46
Latest Discussions»Support Forums»Cancer Support»I have joined the big C c...»Reply #39